Hi Doc. is LVH same as HCM? I have LVH caused by my CHD-PDA and was fixed after 25 yrs. Does it mean that I am still at risk of heart disease? do I need to follow it up to my cardio? I am having symptoms right now, but goes away after resting...
+kelle Thomas My heart murmur was found in 2006, an EKG and an echo were done, but the doctor said I was fine. In 2009 they heard the murmur again and I had another EKG and echo, at which time they diagnosed me with HOCM. Of course, I've always had HOCM since it is genetic, so who ever read my results in 2006 was asleep at the wheel. I was living in NC back then; I moved to Texas in 2012. I currently live about 45 minutes north of Austin.
+kelle Thomas My advice to you is to know that you can live a good life, even though you've been diagnosed with HCM. I recommend you learn about the disease as much as possible; I'm a firm believer that knowledge is power. From what I was told, my procedure took about two hours. I am currently on Metoprolol (have been on it since my diagnosis, just at a much higher dosage now), which is a beta blocker - Eliquis (due to my a-fib), which is a blood thinner - and I am on some anti inflammatory meds for the pericarditis that I have been dealing with since my surgery. I think it's note worthy to mention that my uncle has also been diagnosed with HOCM, but his disease has not progressed to the point to where he needs to have a septal myectomy; his HOCM is still manageable with medication. So, just because you have it, doesn't mean that you will ever get to that point. There are some really good support out there for folks with HOCM. I pray that your appointment goes well. I recommend the Mayo clinic if the indications show that you need surgery...they truly are the best in the world. I wish much luck!
That's awesome. I am so happy to hear that. I was just diagnosed with HCM
and have an appointment at University of Pennsylvania hospital. I have the
symptoms that come with it, which are destroying my life. I'm very nervous,
but also very optimistic. Any advice would be appreciated ;). Btw how long
did the myectomy surgery take and are you on meds now?
It went very well. I had a septal Myectomy on March 25th at the Mayo. The procedure literally saved my life. Everyone at the Mayo were amazing and completely professional in every way. I was in the hospital for roughly 7 days. I have had a few A-fib issues, and have been in and out of the hospital for pericarditis since my surgery....both of which are believed to be a side effect of the surgery. But that being said, I would take those any day over the quality of life I had before my surgery. BTW, I had to have the surgery due to thickening of my septal wall, and my left ventricle from Hypertrophic Obstructive Cardiomyopathy. Dr. Ommen was very great, as was Dr. Schaff and his team.
Maybe Steve Ommen remembers... Met him and Dr. Hartzell Schaff the afternoon of 20NOV2007. Been referred by my cardiologist in Florida. Stop and Get the Picture: 1000 miles from home, meeting strangers. Next day they render me unconscious, crack my chest open, stop my heart, and cut it open and carve a chunk out. Steve had me comfortable in minutes. In a very short session, I had a clear diagnosis, a clear plan, and complete peace. Surgery was completely successful and I got my life back. Without it, by now I would either be dead or dragging oxygen around. Every Thanksgiving I send an thank you email to Mayo. Steve, I hope it reaches you and Dr. Schaff. Anybody suspecting an issue like this, remember, Mayo has a full practice dedicated to conditions many primary cares and cardiologists may never see over a career. A trip to Mayo is SO worth it!
Septal thickness can be reversed. To say no diet helps is western medical speak for only "they have the answers". Thats a larger risk to believe than the HOCM itself. Anyway, I have gone from 40mm to 33mm to 22mm today. I have done it. No drugs, no surgery.
Cardiomyopathy never affected my health until after I'd been in the military for 2 years. After my time in Kuwait I began suffering shortness of breath after meals. I was discharged (honorably) and within 3 years it had gotten so bad every day was life-threatening. After meals I couldn't walk 50 feet at a regular pace without almost passing out. Dr Ommen refused my request to submit his opinion to the VA that these symptoms began during my time in service. You're welcome for my service Doc!
That would be a great idea, especially after the death of the young youtuber Ben Breedlove. I'd suggest references other than cardiologists. There are some really good articles here on youtube from people whose families suffer this disease. These people have done much legwork to find facts that the cardiologists deny pertaining to the disease. ie - cardiomyopathy isn't always inherited. Sometimes it can be caused by things other than genetics - for example Rocky Mountain Spotted Fever. I had it
@nicknack175 I received the following response to your questions from Dr. Ommen: It is possible for HCM to become evident following an echocardiogram with normal wall thickness. The recommended screening is echocardiography every 5 years for siblings and adult children of patients with HCM. If the siblings or children are adolescents or engaged in competitive athletics, then the screening frequency is changed to annual echocardiograms.
Dr ommen, I have had an echocardiogram performed with normal cardiac results about ten years ago. Is it probable or possible that a subsequent echocardiogram in the near future may reveal hypertrophic cardiomyopathy?
I have a hard time telling the difference between being out of shape and symptoms of HCM. There are times when I do physical workout, and have some heavy breathing, and sometimes I feel tired for hours (although, in a "good" way.) How do i discern between simply not being in shape and the symptoms of HCM? thanks.
Hello Dr. Ommen I am a 30 year old woman with hypertrophic cardiomyopathy I live in Puerto Rico.I'v been already ah hospitalized so many times i already forgot the count.No Dr. here in Puerto Rico y wants to risk operation me when I have alraedy an 88% of the muscleof my heart larger then whats its supposo to be.I feel scard and my sysimss are getting worse.How may I contact your clinic? Please help me. firstname.lastname@example.org
I get dizziness (light headedness), weakness, shortness of breath and sometimes get nauseous during exercise, but not all the time, usually this happens when I have eaten just before.
I also fainted suddenly for 2-3 minutes March this year.
I do have manic depression tendencies and also physically I have found that I have very stretchy skin which may be due to ehlers danlos but I have not been diagnosed yet.
I just know something may be wrong, but have a fear of finding out.
@NewPSCity HCM is a genetic condition. Negative ECGs and Echocardiograms, when the images are of high quality, and interpreted by qualified cardioligts, do essentially exclude clinical HCM.
It is possible to have inherited the genetic trait from a parent but still have normal ECG and Echo. There are not enough data to determine whether, in these cases, if there is excess risk from participating in sports. Dr. Ommen
@mayoclinic Thank you Dr. Ommen for the response, I play soccer and I was reading about HCM, and this got me worried. So I did some research about it and I believe that it is genetic, am I correct? I had 1 Ekg in December, 1 Echocardiogram in January and another Ekg in February, they all came back normal. So I guess that clears me for any heart problems and that my heart is ok. But still have this awareness of my Heart that does not go away since December. Thanks! again Dr. Ommen :)
I have this condition as well. It is genetic on my father's side and he passed away in November. His twin died in 2003, his aunt in June of 2010, and his niece back in 1994. This is very prominent and my sister and I both have it. I am currently on medications and I am experiencing some more symptoms that I am being treated for now. I wish I could get to the Mayo clinic for treatment. Here in AR there are very few doctors that dedicate their time to helping patients.
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